Vanishing Culture: Archiving Community Care Work Online

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The following guest post from researcher Amanda Gray Rendón is part of our Vanishing Culture series, highlighting the power and importance of preservation in our digital age. Read more essays online or download the full report now.


When asked to consider women’s care labor, people likely think about feminized gender roles within “the domestic sphere” where labor has historically been invisible and undervalued. For women of color, the lines between public and private have often been blurred, as evidenced by the family photo of my great-grandmother picking beets in a field while caring for my two-year-old grandmother. Sixty years later the roles would reverse and my grandmother would serve as the primary caregiver for her mother with Alzheimer’s dementia. I could not begin to quantify in dollars the thirteen years of 24/7 care she provided our family.

In U.S. culture, women have historically been photo restoration service of as “natural” caregivers or predisposed to caring for others, so little to no concern has been given to assigning monetary value to the labor that women are expected to perform.

This begs the question: how can we adequately archive a history that is designed to be hidden and undervalued precisely because of how invaluable it is to our social, cultural, and economic fabric?


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Women’s care work—both paid and unpaid—serves as the foundation on which the world’s postindustrial economies have functioned. Working mothers and caregivers often participate in what scholars refer to as the “double-day,” or the “double shift.” This is when (predominantly) women have an income-earning day job followed by unpaid caregiving labor they provide their families when they get home in the evening after “work.” Some have argued women’s care work has expanded into a triple shift whereby women have taken on more caregiving roles within their communities, adding significantly to gendered burdens of care.

The invisible, and at times isolating, nature of care work contributes to the precarity of archiving women’s care labor history. To preserve this aspect of our cultural history, it’s vital to engage with those performing care work, as well as to understand the different ways that community care work is performed. Documenting caregiver culture on social media allows us to identify the contributions that caregivers and care communities make, along with the barriers they face.

No one has helped me to understand this more than Cynthia “Cindy Ann” Espinoza. Cindy Ann and I met when we both attended Metropolitan Community Church in San Antonio. She graciously offered to participate in my research when I spoke at a community education session on Alzheimer’s disease that the church sponsored in collaboration with the local chapter of the Alzheimer’s Association. We became Facebook friends shortly thereafter and I observed firsthand the virtual care work in which Cindy Ann participated, as well as the archive she had created of the “real world” care she provided her mother who passed from complications of Alzheimer’s dementia several years earlier.